Tuesday, May 8, 2012

About our special family

This is our online journal and photo sharing spot. Basically my external brain so I can add our adventures and not forget our special memories. This will probably be a random shuffle of information. Stories about the kids. Cute quotes, cute pictures. Maybe some music and video clips. Just sit back and we will see where this ride takes us. 

Our introduction.

We have four special kids spread out in age from baby to high school. All four kids have medical challenges but they keep fighting. Some of our challenges are epilepsy, crohn's disease, celiac disease, asperger's syndrome, severe life threatening allergies, cerebral palsy, learning differences, physical delays, congenital heart defects, failure to thrive and mosaic Down's syndrome. Our lives may be full of doctor appointments, therapy appointments, medication and school meetings but it is also full of love. 

Mom, Jennifer. I am the one who writes and manages this crazy adventure. 

Dad, Harry. He is the one who supports us all and keeps us calm and moving forward. 

Oldest brother, Taylor will be 20 years old April 6 2013. He is a high school senior and will be attending college in the fall. He has epilepsy, crohn's and celiac.

Middle brother, Cameron will be 11 years old May 23 2013. He is in 5th grade and has asperger's syndrome and severe allergies.

Middle sister, Kaylynne turned 7 years old on January 25 2013. She was born with a club foot and mild cerebral palsy. 

Baby sister, Darcie turned 1 year old on February 23 2013. She is super tiny and has mosaic Down syndrome and congenital heart defects. 




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